💬Community

Connect by topic and country. Be kind — everyone here is navigating ALS.

Important

ALS Together is an informational and peer-support tool. It is not medical advice and does not replace your care team. Treatment approvals and reimbursement change frequently and vary by country — always confirm with a qualified clinician and the relevant national authority before making decisions.

💬Community

Insurance won't cover Radicava in my country — where else is it approved?

Just diagnosed at 41 — what helped you most in the first month?

Has anyone been tested for the SOD1 mutation?