PatientMara· United Kingdom· 10dTreatment access & insuranceInsurance won't cover Radicava in my country — where else is it approved?I'm in the UK and edaravone isn't available here. Has anyone accessed it from another country, and how did that work with your neurologist?1 reply · View
PatientSam· 8dNewly diagnosedJust diagnosed at 41 — what helped you most in the first month?Feeling overwhelmed. Practical tips for the early days welcome.1 reply · View
PatientLars· Germany· 6dClinical trialsHas anyone been tested for the SOD1 mutation?Reading about tofersen — it's only for SOD1 ALS. How did you get genetic testing arranged?0 replies · View