🤝Resources
Established ALS/MND associations and support organizations by country — for care, equipment, benefits help, and community. Filter to your country, or use the International Alliance to find your local group.
International Alliance of ALS/MND Associations
The global network of national ALS/MND associations — use it to find your country's organization if it isn't listed below.
ClinicalTrials.gov
The worldwide registry of clinical trials — search recruiting ALS studies (also built into the Trials tab here).
ALS – Amiben Lehet, Segítünk! Egyesület
Hungarian ALS patient and caregiver support association: advocacy, community, education, and help for families.
RIROSZ – Hungarian Federation of People with Rare Diseases
Umbrella organization for rare diseases in Hungary, including ALS — information and patient representation.
The ALS Association
Care services, local chapters, advocacy, and research funding across the US.
I AM ALS
Patient-led community, resources, and advocacy.
MND Association
Support, equipment loan, local branches and research across England, Wales and Northern Ireland.
MND Scotland
Care, support and research for people affected by MND in Scotland.
Irish Motor Neurone Disease Association (IMNDA)
Specialist nurses, equipment and support across Ireland.
ALS Society of Canada
Provincial support, equipment and national research investment.
MND Australia
National peak body with state associations providing care and advice.
MND New Zealand
Support, advice and advocacy for people with MND in New Zealand.
DGM – Deutsche Gesellschaft für Muskelkranke
Support and advice for neuromuscular diseases including ALS.
ARSLA
France's ALS association: support, equipment, and research funding.
AISLA
Italian association for ALS — assistance, advocacy and research.
ALS Centrum Nederland
National ALS expertise centre: care, treatment and research.
ALS Liga België
Belgian ALS league: support, equipment loan and advocacy.
adEla – Asociación Española de ELA
Spanish ALS association: care, support and awareness.
ALS Schweiz
Swiss ALS foundation: support, counselling and research.
Links go to independent organizations we don't control. If your country isn't listed, the International Alliance can help you find a local association.